Baring It All & Finding A Little Light…

High heels, beautiful dresses, topless women, massive scars, empty kleenex boxes, and dim lighting. I know what you’re thinking…a strip club gone terribly wrong? Nope. I’m referring to the opening night of Breast Fest 2011 and a screening of Patricia Zagarella’s powerful new documentary, “Baring It All” featuring renowned photographer David Jay of the SCAR Project and a few brave women who let us into their lives and under their shirts to show the world what we survivors already know – that breast cancer is about SO much more than just a pink ribbon.

If you haven’t heard of Breast Fest yet, here’s a synopsis from Rethink Breast Cancer‘s site: “This annual festival uses films, panels, workshops and speakers to connect people to the breast cancer cause, inspire dialogue, facilitate learning and foster community. Breast Fest is the world’s first film festival dedicated to breast cancer awareness and is an initiative of Rethink Breast Cancer.”

On a side note, I bet you’ve heard of Rethink because you probably saw this clever and drool worthy (for the ladies anyways) video when it made its round on Facebook in the month of October: My Man ReminderContinue reading

The MirrorBall & My 60 Second Brush with Fame…

My heart doing the Indy 500. Kim D’Eon of ET Canada on the giant high definition screens. My untouched tomato soup getting cold in front of me. An urgent need to pee. Black lace over red tablecloths; girls dressed in vaudeville costumes; and a half-naked singing contortionist. I am at the 2011 MirrorBall; a gala put on by the Canadian Cosmetics, Toiletry, & Fragrance Association Foundation as a fundraiser for the Look Good, Feel Better program and www.facingcancer.ca.

“It’s time,” she nods and I stand up and pretend my fingers haven’t turned to icicles and my feet are not wobbling inside my 3″ heels.

“Where’s your speech?” one of my fellow bloggers asks.

“I don’t have it written.” I say and wonder if I really have gone crazy. What possessed me to get up in front of 700+ people without so much as a cue card to lean on? Continue reading

We Can’t Just Call Her “Baby” Forever, Can We?

Do you remember the anticipation leading up to the birth of your first child? When at every baby shower, last-day-before-maternity-leave lunch, or extended family brunch, someone would lean in conspiringly and ask if you had a name picked out? Your great-aunt or your new colleague, whose name you kept forgetting, would say something like, “Oh you can tell me. I won’t tell a soul.”

Maybe you knew exactly what the little person inside of you would hear at every first-day-of-school roll call for the rest of her life. Or maybe you were frozen with panic about picking the WRONG name? Maybe months of people’s unsolicited feedback had worn you down. Comments like, “I knew a Paul. He was so awful” or “Grace, how nice” even though you can tell from the look in her eyes, she doesn’t think the name Grace is “nice” at all.

What if you still didn’t have the perfect name picked out, when your red faced, screaming miniature human made his grand entrance? How long did you get away with calling him “baby”? Continue reading

Palliative Care, Fluorescent Sky Lights, & Gratitude…

Palliative Care.

Who knew two words on a little sign above a non-descript doorway could make my blood run so cold it feels like someone has ripped an icicle spear from a wintery roof and stabbed it into my carotid artery. Every second I stare at the sign, the drip, drip, drip of fear slides through my veins.

I look away in case in some messed up way, staring at it for too long will foreshadow my future. An image crystallizes in my mind of my friends and family bringing their young children to see me in my prison while I spend what’s left of my youth, waiting for “it” to be over.

To escape this morbid thought, I search for the Information Desk and speed-walk under florescent lights installed in the shape of sky lights to get there. Patients in draughty hospital gowns lean against IV poles and visitors wear the masks of soldiers in the midst of battle.

Just make it to the information desk…just make it to the information desk, I whisper to myself. When I get there, a white haired woman wearing a Wal-mart inspired blue volunteer vest gives me a bright smile and asks how she can help. I almost grab her by the wrists, stare into her grey eyes and say, “you can help by promising me I DO NOT have the start of ovarian cancer on top of my recent breast cancer and I WILL NOT end up in Palliative Care. Ever.” Instead, I ask her to direct me to Diagnostic Imaging area for my 2pm ultrasound appointment. Continue reading

What I Know For Sure….(thanks for the phrase Oprah!)

Have you ever been half way through your second box of Kleenex after the break-up  to end all break-ups when a well meaning friend tells you to snap out of it? She prattles about how you shouldn’t give him the satisfaction of your tears and you better pick yourself up, put a smile on your face and be glad you didn’t waste any more of your time with that sad excuse of a man.

Even if she has a point (about the guy), every part of you wants to crack your fist against her skull while you scream, “Just…LET ME BE SAD!”

This past weekend, I received a couple of well-intentioned messages from friends who read my “Hello Rock..Ahh…Hard Place…Here You Are Again” post and cautioned me against letting fear and anger into my life. They exclaimed that I need to stay positive if I want to stay healthy. One even went so far as to say that I knew better.

The thing is, I do know better. What I know for sure (thanks Oprah for letting me borrow your line) is that suppressed emotions lead to anxiety, depression, and all kinds of other unsavoury things (yes, I am speaking from personal experience). Continue reading

Hello Rock…Ahh…Hard Place…Here You Are Again…

The clicking of her heels echoes on the laminate floor and I wonder why the receptionist wore stilettos to work. Between her ready for a nice dinner outfit, the track lighting overhead and the tasteful black and white pictures on the walls, I can almost convince myself that I am not at a doctor’s office. Almost…

Irritation and rage intermingle under my skin and seem out of place amidst the room’s soft gray walls. Sitting here brings up plenty of emotions that I haven’t had to feel for awhile. I know this because I am now even irritated by the walls – the damn paint is probably called something like Silk Pillow (I checked – this colour exists). Well, it is not helping me feel very serene…

Time crawls as expectant mother after new mother either rubs her belly or jostles a fussy little one. This could be a record: four babies and two mothers-to-be in the space of my 45 minute wait. For the first time, I curse my doctor for having such a large maternity practice. Why do I need such a blatant reminder of what I might not get to have?

My hand massages the pain in my lower abdomen as images of cancer parade through my mind. To distract myself, I pull my Blackberry out of my bag and compose responses to emails until my thumbs ache. When the receptionist finally calls my name, I dutifully follow her into the exam room. At least the wait is almost over.  Continue reading

The Power of Unexpected Connections

While I’m on the road traveling through Africa, I am excited to share a couple of guest posts with you. The first is by Stephanie Sliekers, a new friend that I made through the www.facingcancer.ca website.

In July 2010, I went from being a 25-year-old-living-it-up-in-the-city to a role I hadn’t even briefly imagined for myself: cancer patient.  Sitting in the doctor’s office on that fateful day, I became aware of my nerves only after I was told the results of the routine chest x-ray ordered to investigate my difficulty breathing were ‘serious’.  A large tumour occupied my entire right chest cavity.

From that moment on, as my friends continued down the paths of most 25-year-olds, making the most of a hot, sticky summer in the city, I veered down an alternate path toward scans, biopsies, late night emergency room visits, and even one ambulance ride.  After missing out on all the summer’s wild nights and cottage weekends, I began chemotherapy treatment for non-Hodgkin’s lymphoma.

That autumn, as the fiery leaves began to fall from the trees, I found stability in the monotony of treatment.  Every three weeks I was back at Princess Margaret Hospital, getting blood work, my chemo pills, and hoping my blood counts had spiked so I wouldn’t have to pay for the dreadfully expensive Neupagen medication.

Christmas passed and my routine abruptly ended.  Shortly after finishing 8 rounds of chemotherapy, and just as I was starting radiation treatment, my world changed rapidly once again.  I maxed out the 15 weeks of sick benefits I was eligible for from the Government of Ontario, and in a desperate attempt to hold onto the downtown apartment I so cherished, I decided to return to work.  Spring loomed around the corner and I was impatient for a renewal of normalcy.

Normalcy, however, was far from my grasp.  Standing on the subway car coming home from my second day back at work, as I breathed in the odour emanating from my neighbour’s sweaty armpit and tried desperately to prevent my knee from finding his groin every time the car came to a stop, I felt overwhelmed by the indifference that surrounded me.   Aggressive pushing and polite pleading were barely enough to get me past the unsympathetic strangers who stood between me and my exit.  It was only once I was free that I realized I was back in the real world, and it never felt colder.

Arriving at my apartment, the memory of the solemn faces on the crowded subway car hung over my like an overcast sky.  In a desperate attempt to quell the feelings of isolation, I took to the mouse and keyboard in search of a light at the end of the tunnel.

Afreshchapter.com caught my eye because of the blogger’s age, a young woman just like me who had also been stunned by a cancer diagnosis, who wrote in a calm and soothing tone.  My index finger ached as I furiously clicked through the archived posts.  Reading Terri’s affirming and insightful blog wasn’t discovering a light at the end of the tunnel.  Instead, I crossed paths with someone who lit the tunnel up from within.

Before I had time to second-guess it, I was typing Terri a message.  I heard back from her promptly, and we exchanged a few light-hearted e-mails joking about the disconnect we sometimes feel with our friends, how often we ‘hit the clubs’, and our re-emergence into society post-treatment.  After trying all day to fit in with my co-workers, it was comforting to connect with someone who understood exactly why I was different.

My chance, virtual encounter with Terri meant more to me than simply ‘I am not alone’.  I wasn’t alone, but I also wasn’t stuck in a world of callous strangers.  There are people just like me everywhere.  Some of them were on the internet, ready and eager to connect with each other.  But some of them might also be sitting next to me on the subway, or passing by me on the street, possibly even hidden by a dark cloud of loneliness, just like I was that afternoon.

On any other day, Terri would have been among those strangers that I hastily pushed past by on my commute to and from work.  But that day, simply because I happened to be looking, the sea of people parted to reveal a familiar and sympathetic face.

Tomorrow, I’ll keep my head up and continue to look for such a face.  And maybe, after discovering at least one other person who could show me the same kindness and understanding, my own cloud of loneliness will be kept at bay long enough for someone else can find me.

Stephanie Sliekers is a 26-year-old currently adjusting to her new role as ‘cancer survivor’ in the city she loves, Toronto, ON.  For more information on Stephanie’s journey, visit her personal blog at www.100resolutions.blogspot.com.