Why Not?

“If one advances confidently in the direction of his dreams, and endeavors to live the life which he has imagined, he will meet with a success unexpected in common hours.”

~ Henry David Thoreau

Are you a big dreamer? A believer in new possibilities? A couple of weeks ago, I wrote a post for I Had Cancer – Hope Is My Religion – where I shared my favourite quote from the Alchemist about believing in possibilities and daring to dream lofty dreams.

I love connecting (both off and online) with other dreamers and Carolyn Taylor is one person I can’t wait to meet in person. She is a fellow survivor, global cancer advocate, and BIG dreamer. During her 2010 around the world trip to photograph the face of cancer, Carolyn recognized the desperate lack of cancer awareness and support in developing countries and decided to do something about it. Global Focus on Cancer is the result of her dream and I would love for you to click here to read more about her recent trip to Vietnam and her inspiring mission.

When Carolyn learned about my Big Hairy Audacious Dream and my desire to volunteer within the African cancer community, she made a few introductions and while in Dar Es Salaam, Tanzania, I had the privilege of meeting even more women who are dreaming BIG, INSPIRING dreams.

My time in Dar started with an Easter Monday visit from Dr. Dominista Kombe – one of only four oncologists in the entire country of Tanzania. (It’s unfathomable to me that this figure roughly translates into ONE oncologist for every 10 MILLION people). After a few hours of sharing stories, she drove me to her home so I could meet her family and see her dream in action. You see, Dr. Kombe has big plans to spend her retirement running the Dar Es Salaam Oncological Care and Counselling Services facility. In a small building next to her house, she will offer mammography, cervical cancer screening, awareness seminars, and counselling to people who otherwise would not receive it. As she and I walked through the compact rooms, still filled with the smell of fresh paint, she showed me where she wants to put the mammography machine (once she can raise the money to buy it) and where women will get access to one on one counselling. With a breathless voice and shining eyes, she talked about her dream to provide these (in my mind essential) services to as many of the men and women of Tanzania as she can. Continue reading

Sisters From Another Mister…

Peeling yellow paint hangs from the gritty cement walls and I look down just in time to step over a puddle of muddy liquid on the worn landing. As we pass through the congested doorway and onto the third floor, I bite down hard on my lip so my chin won’t drop. The last thing I want is to look like a stereotypical Westerner with pity pooling in my eyes at the site of circumstances far different from my own.

I look to the right and a man, barely more than a boy, lies on a splintered bench that hangs at an awkward slope from its hinges. He stares at a point in the distance as a bottle, hooked on a nail overhead, dispenses what I assume to be chemo drugs down the length of the dirty wall and into his waiting vein. An old man in black plastic sandals scuffs towards the bright fluorescent lights of the communal bathroom. Instead of an IV pole to rest against, he leans heavily on the middle aged woman beside him. His caregiver holds the bottle high in the air, like a flag, as they continue their slow march through the crowd. Continue reading

My Near Death Experience

The story of my near death experience started on a Sunday night last January; three days after my second round of chemo. Let me take you back there…

My arms and legs tingle and my stomach somersaults in fear as I reach up to touch my hot, clammy face. I grab the thermometer from my bedside table and jab it at the underbelly of my tongue. Dammit! For the first time since I started obsessively checking on Thursday, the numbers on the digital screen crest above 38*.

My oncologist promised that if I started shooting up with my immune boosting drugs the day after chemo, instead of five days later, I could prevent another trip to the emergency room. I heeded her advice and took my new role as GMF junkie seriously. I would roll the icy refrigerated $250 vial between my palms to warm it up, streak an alcohol swab across my skin, load up my syringe, and pierce the needle deep into my stomach fold. Yet, in spite of my diligence, I STILL HAVE A FEVER? WTF?

Twenty minutes later, I give my name to a smiley woman at the front desk of The Cancer Agency and follow a nurse with puppy dog scrubs and squeaky orthopaedic shoes to a hospital bed. She pulls the curtain to give the illusion of privacy, and then fills up two Tabasco size jars and ten vials with my blood. I wonder if I have any left as I lie shivering in my feverish skin. Two hours and twenty warming blankets later, the doctor on call finally arrives with my test results.

“Good news”, she says, “your white blood cell count is within normal range.” She prescribes a dose of preventative antibiotics and tells me that I can go home.

Sophie (my support person/partner in cancer crime) looks at me with elation because I don’t have to go back into a sealed room. I want to match her enthusiasm, but I am so fevered that I can barely lift my head off the pillow. I feel like a 92 year old with Parkinson’s as I pull on my sweater, my coat, and the scarf that I use to cover the blinding white of my bald-head. Sophie pushes a wheelchair up to the bed and I gingerly step into it.

The doctor waves a cheery goodbye as Sophie pushes me down the hallway. En route, I see a water machine with plastic cups and ask her to stash some in her purse for me. During my recent hospital stay, I learned that drinking out of plastic vs. glass makes water taste less like it has been infused with the flavour of rusty nails. Sophie parks me by the wall, checks to see if anyone is watching, and then hustles over to the water dispenser.

As I stare down the hallway to make sure the coast stays clear, my vision gets fuzzier and fuzzier. I call out to Sophie with a high-pitched wail. “Help! Something is wrong. I can’t see.” I wonder if I am dying as punishment for stealing a few measly cups.

Sophie drops everything back on the counter and yells for help. The doctor runs up and crouches beside me as I tell her between sobs that I am going blind (my glasses are still on my nose – I double checked). She asks questions in an attempt to downplay my fear. A furnace of heat rips through my body and sweat drips out of every pore. I reach up to pull off my scarf to get some air and then everything fades to black.

When I open my eyes, I am back on my hospital bed as nurses strip off my clothes,  a blood pressure cuff clutches my right arm, and an icy draft floats across the layer of dried sweat that clings to my skin. Before I fade out again, I notice tears in Sophie’s eyes. The prick of an IV in my arm wakes me up the second time and I hear the doctor order one of the nurses to run my IV ‘wide open’. I shiver as the icy liquid surges up my veins.

I ask Sophie what happened. She tells me how my head fell and ricocheted off the back of the wheelchair. How she saw the whites of my eyes as my leg kicked out into nothingness. How sick I looked with sweat running from the top of my bald-head down to my pale collarbones. How the doctor didn’t even turn my wheelchair around as she yelled at the nurses for help and pushed me backwards into the room. How as the nurses stripped me and hooked me up to machines, she had pictured having to call my parents with tragic news.

“Don’t worry. I’m fine.” I say to her. “I promise.” The color slowly returns to her face.

I don’t have the heart to tell her that I am secretly a little bummed that I missed the most exciting part of the night.

Why couldn’t I have witnessed my near death experience from the corner of the room as I looked benevolently down on my sick self? Why couldn’t I have seen a bright light and had a chat with some angels before they convinced me to turn around because I had so much left to accomplish on Earth? At least then I would have a good story.

Two IV bags of saline, 3 Tylenol and a consult with the doctor later, Sophie expresses concern about taking me home. What if this happens again? What if she can’t get me medical attention soon enough and I stop breathing? The doctor smiles indulgently and says that my blood pressure has now stabilized and she doesn’t see any reason why I should faint again.

It turns out that my near death experience wasn’t that near death after all.

Confessions From My Chemo Diary

Here’s an entry from my journal a year ago.

Dear Diary,

Newsflash…chemotherapy blows! So much for my ‘mind over matter’ strategy. I thought if I combined my 20-year no-barfing streak and Lance Armstrong’s advice on keeping physically active, I would kick chemo’s ass. I didn’t have grandiose plans for a post cancer Tour De France (I haven’t ridden a bike since the pink 10 speed I got during the sixth grade), but I thought I would make the most of my free time between treatments by going for long, introspective walks and meeting up with friends for cappuccinos.

My first round of chemo had other ideas for me …

Although I had planned to start January 7, 2010 well rested, I only managed to squeeze in about two hours of sleep the night before. From midnight until 3am, I watched infomercials, planned my first day of chemo wardrobe, scrubbed my bathtub, and read Anna Karenina in an attempt to get tired. Then I spent the next three hours punching my pillow in the dark while I cursed the day my Starbucks barista was born (she obviously ruined my life by making my 5pm latte with caffeine instead of decaf). I had already plotted my return to the scene to yell at her when I remembered the nurse telling me that the pre-chemo steroids could cause insomnia.

I choked down half a piece of toast and headed for the Cancer Agency. Then, I settled into a green lazy boy chair while the nurse quizzed me about my drug intake the previous day. She shook her head in irritation because I had missed the bold instructions on the pill bottle to take 2 steroid tablets twice a day and not just one.

She topped up my steroids intravenously and then hung a plastic bag with a bio-hazardous sign on the IV stand next to me. I tried not to watch as the cold poison dripped into my veins. Less than five minutes after it started, I yelled at her to stop before I projectile vomited onto the little old lady beside me. (Did they not consider the risk of chain reaction barfing when they designed the chemo treatment rooms to have patients sit in a circle, facing each other?)

A doctor arrived and instructed the nurse to dump Benadryl and Gravol through my IV so that I would stay too stoned to notice my body’s allergic reaction to the drugs. Four hours later, I got home, organized my closet, and decided that maybe I should get a bike.

But when the steroids and the good anti-nausea medication wore off a couple of days later, I reconsidered. I spent the weekend crawling (sometimes literally) between my bed and the bathroom floor. Sitting in front of the toilet while eating out of a bag of corn chips (my gluten intolerance ruled out soda crackers) became my new hobby. When I stood up to stumble back to bed, I tried to avoid looking at my spotted, 14 year old acne face in the mirror and then gingerly lowered my screaming muscles onto my duvet (they ached more than the day after I completed my first and last half-marathon). I lay there too sick to move and wondered how people got through more than four rounds of this hell.

By Wednesday night (six days post chemo), I started to shiver inside my clammy skin. GO TO THE EMERGENCY ROOM IF YOUR TEMPERATURE RISES ABOVE 38* shouted the message on my Chemo Emergency Contact sheet. I tried to be a hero and tough it out, but the next morning, my Aunt drove me to Vancouver General Hospital. I knew I had a high fever (39.9* or almost 104* on that morning) when she had to come with me to the bathroom while I gave my urine sample because I was so delirious that I got lost between my stretcher and the toilet. After 12 hours in the ER, three doctors agreed on a diagnosis of Febrile Neutropenia. I was impressed until I heard that it meant fever with an undetermined infection. No sh!t.

At 4am, a porter pushed me through hushed hallways until we arrived in my new pressurized isolation room in the acute care ward. They sealed me in. Later that morning, a nurse whispered to me from behind her face-mask that I had a white blood cell count of zero. I nodded, unfazed. Then she explained that if I got exposed to any type of illness, I could literally die. I was silent. I couldn’t think about all of the germs that floated by me during my 24 hours in Emergency.

Three days of temperature checking, bedside counselling (who knew chemo would make me more emotional than my worst case of PMS), and 2am gown changes (hello hot flashes), a doctor came in with my discharge papers. I could have kissed him as I thanked him and the amazing nurses for their tireless support.

I put on real clothes for the first time in four days and looked back at my hospital bed as I opened the door of my temporary jail cell.  I tried not to notice the colony of hair strands littered all over the white sheets. Today I would celebrate my freedom; tomorrow I could worry about shaving my head and preparing to face off with chemo for Round 2.

Escape

Maybe you can relate to that first moment of awareness. When you open one eye and search your dark bedroom for clues. You wonder why it’s so quiet. Did you forget to set your alarm? A rush of panic whistles into your gut. Then you remember that it’s Saturday.

You grin and burrow under your duvet as you leaf through the memory of your dream. You pick up the cell phone on your nightstand to call your lover, just so you can hear his scratchy morning voice. But as you continue your ascent into alertness, you remember. You can’t call. It’s over. Your stomach pulses with pain. You lie there, immobilized by sadness, as you try to process the reality of another day without him.

A year ago, as I counted down to my first day of chemotherapy, that same feeling of dread greeted me every morning. To get through the day, I sent upbeat emails to people announcing my medical leave or met up with girlfriends to drink wine and trade holiday stories. I shopped for new bedding, did my taxes, and organized the clothes in my closet by colour. But as much as I tried to escape, the murmurings of fear took up more and more space in my mind. I couldn’t concentrate on anything. At least that is my excuse…

It’s January 5, 2010 and Sophie and I have just turned onto Ash Street en route to the Cancer Agency. She asks how I feel. I tell her I’m fine. This is just an informational session. I won’t have my first treatment for a couple of days. I tell her that I am living in the moment (yeah right).

We park and as I yank my purse over my shoulder, I hear the pill bottles slam up against each other. When we squeeze into the crowded elevator, I try to keep my bag from swaying (I don’t need a constant auditory reminder about why we are here). On the second floor, I flip through a dog eared magazine from 2007 until I hear my name and we are ushered into a tiny office that smells like re-heated meatloaf. I breathe through my mouth as I open my notebook, pick up my pen, and act interested in my drug lesson.

The nurse asks if I brought my stash and in reply, I line up full containers with words like Apo Prochlorazine, Dexamathasone and Ondansetron on her desk. She hands me stapled sheets with detailed information on six different kinds of drugs (the ones in front of me and the other ones that will slide up my veins in a couple of days). Side effects ranging from diarrhea to mouth sores try to get my attention, but all I see is one word under the heading of the drug Docetacel: Alopecia. I hate that I now know this means baldness. I put down my pen and my vision blurs.

I float through the rest of the appointment and don’t come out of my panic coma until half an hour later when I see the receipt at a nearby pharmacy for my immune boosting drugs. $2149.00 to get me through the first half of chemo. Are you kidding me? The pharmacist shrugs and slides a paper bag full of syringes, alcohol swabs, and little vials (that I must hurry home and refrigerate) across the counter to me. I silently thank the Manulife Insurance Angels for covering this bill. But my gratitude slips as I visualize injecting the contents of these vials into my stomach.

I stumble to the street and watch for Sophie’s black Volvo SUV. She said she would circle the block while I ran into the pharmacy.

A vehicle pulls up; I get in, close the door and keep my eyes down so that Sophie won’t see the tears. The Toyota logo on the grey mat catches my eye. In slow motion, I shift my gaze to the left. A woman wearing a full face visor waves her hands and yells at me. Where did Sophie get the visor and why is she wearing it on a cloudy day? I know something is not right but it takes forever for my brain to catch up. The woman beside me is not speaking English and looks nothing like Sophie. My face explodes with heat. I am in the wrong SUV. I stammer my apologies and try to slip out unnoticed, but ten people waiting for the bus stare me down.

My audience watches in interest as another SUV pulls up and I triple check Sophie’s face before I get in. I tell her to hurry so I can get away from the stares. She asks me what happened and before I reply, I am laughing, a belly-jiggling, mind-freeing laugh. I am laughing so hard that I can barely tell her about how I accidentally car jacked a woman with a box of syringes as my weapon. She probably thinks that cancer has finally made me crazy, but I don’t care. If only for a moment, I have escaped the dread and want to stay in this beautiful moment of laughter forever.

Shot Through The Heart

‘You will need chemotherapy, your hair will fall out two weeks after your first treatment and you cannot go back to work for at least 6-10 months,’ Dr. L says.

One year ago today, my oncologist’s words ripped through my hospital gown, past my scarred breast and lodged directly into my heart.

Until that moment, I had convinced myself that she would give me good news. She would say that after careful deliberation, she couldn’t permit my tiny little tumour to cause any further disruption in my orderly life. She would refuse to let chemo steal my auburn locks, separate me from my livelihood, or leave me with dark under eye circles and hemorrhoids the size of golf balls (yes I said it).

But now, she has pulled the trigger and shot me with reality. I reel from the impact and plead silently with her for some good news. Thankfully, she reads my mind.

‘On the upside, we don’t need to get started until after Christmas, so you can enjoy the holidays with your family. Also, this type of chemo should not dramatically impact your fertility. Your periods should return to normal 3-6 months after chemo ends and plenty of women your age have gone on to have healthy babies,’ she continues.

Thank God! Last night, K had to come over to help me select my baby daddy finalists. (My sweaty palms and chest pain at the thought of opening the sperm donor website meant that I needed an accomplice). After running multiple contenders through her eight criteria system, she helped me settle on: 64573, a lawyer who likes to swim, read, and travel and 53296, a teacher who has a wife and two kids, but wants to provide other people the opportunity to experience the joy of children. He also enjoys photography and long walks on the beach (obviously with his wife and not me).

I had hoped that narrowing down my choices would give me the incentive to take the plunge into pseudo-motherhood. It hadn’t. (See my posts: Chemo and my Biological Clock and Finding a Baby Daddy to catch up on the fertility conversation) Now, I smile in gratitude that one day in the distant future, I will have the opportunity to create babies the old fashioned way.

My smile disappears as she outlines chemo’s side effects and hands me a stack of brochures with topics like: what to eat when everything tastes like a mouthful of dirty pennies, how to tie a scarf around your head and add one earring for an ‘interesting touch’, and how to keep your energy levels up by incorporating exercise into your chemo routine (do I look like Lance f*^@ing Armstrong to you?)

My Aunt and I inundate Dr. L with questions because we know that when she leaves, I will have to transition from the information portion to the ‘holy crap how did this become my life’ portion of the day. Dr L. humours us for a while and then gracefully makes her exit. After she leaves, I turn to face the bed, rip off my gown and pull my sweater over my shaking shoulders.

I grab the pamphlets, hide them in my purse, and turn to face my Aunt with a broad smile and a face dripping with tears. She mirrors me and we begin our manic routine of alternating between giggles and sobs for the next twenty minutes.

She suggests Starbucks and I mumble ‘yes please’ so that I can avoid my empty apartment. Besides, chemo will hopefully make me scrawny (finally, one fringe benefit), so why not take advantage by loading up on an Oat Bar and a Caramel Macchiato with extra whip cream? Let the good times roll!

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